Archive for April, 2010

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Andy – Day 1

April 30, 2010

My brave and wonderful husband, feeling very positive (epidurals are great apparently!)

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Andy’s Story

April 30, 2010

My husband Andy is 27. He was diagnosed with Ulcerative Colitis in 2001, and whilst it caused the usual problems, it was fairly well controlled and mild throughout.

6 weeks ago Andy got ill with symptoms similar to food poisoning, after a week it was diagnosed as a flare up of his Colitis and he was put on a 5 day course of steroids. 3 days after that course ended it returned, we repeated the steroid course, 2 days later it was back. At this point we went to the GP who sent us to the hospital. Andy was admitted, treated for the Colitis and sent home after a week. 2 days later he was still vomiting and was re-admitted. Over the next 6 days we were told it was Norovirus, a small intestinal blockage, the C Diff infection… breakdowns in communication meant that the cat scan the surgeons wanted was never realised and he was discharged.

Unable to keep anything down I brought him back to hospital a day later. We finally got some good doctors and some good communication. Tests, x-rays and a cat scan were carried out. Yesterday, Thursday 29th April, Andy was told he had a complete blockage of the large intestine and it would need to be removed that afternoon. He would have an stoma and an ostomy bag for the forseeable future.

This was devastating to us, mainly because we thought it would mean life as we knew it would end. We had 3 and a half hours to come to terms with it before they took him down to surgery. We cried and prayed and told each other how much we meant to each other, and at half past 4 that afternoon they took him down for surgery. It took 3 hours and went extremely well.

And that is where we’re up to. Andy had a good day today and was very alert and awake and feeling really positive. We are blessed with 2 amazing Stoma nurses who will be supporting us every step of the way and have totally reassured us that there is nothing he can’t do now. We also saw the dietician who will be helping Andy put back on the 2 stone he’s lost in the last 6 weeks. The next two days are very important while the incision completes its primary healing stage but by Monday we’ll be on our way!

Ses

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The Beginning

April 30, 2010

We decided to start this blog because, when faced with hardly any time to come to terms with the Ileostomy having to happen, so much of the information we found was negative, focussing on the downsides to the surgery. There is life after the Ileostomy, there will be, and we’d like to share this journey with other people faced with the same thing.

Ses